In honor of Data Privacy Day 2024
Please join us on
Feb 2, 2024
Beyond HIPAA: Mental Health Apps, Health Data, and Privacy
Twenty-first century technologies, in particular the apps we use on our mobile devices, combined with the lack of effective, privacy protective laws in our information economy, create risks for data related to our health. Duke’s Data Privacy Day 2024 event, “Beyond HIPAA: Mental Health Apps, Health Data, and Privacy” will address the vast category of health information that is not covered by the Health Insurance Portability and Accountability Act and the urgent need for privacy law and policy to regulate the commercial collection and use of this data.
In a fireside chat, Marc Groman and David Reitman will introduce our topic by discussing mental health apps and the privacy implications of these services. In addition to the data generated by our increasing pursuit of mental and physical health, fitness, and wellbeing in a digital environment, sensitive information about our health can be inferred from our online and digital interactions and subsequently monetized or used for unanticipated purposes. In an extended discussion with a panel of experts, we will explore the meaning of health data and the ways it is collected and used as well as legal and policy solutions to the multi-faceted challenges generated by the commercial use of this data. Please see below for more information about our esteemed panelists - Maneesha Mithal, Justin Sherman, Tim Sparapani, Dr. Rachele Hendricks-Sturrup, Marc Groman and David Reitman. We hope you will plan to join us for Data Privacy Day at the Duke Law School on Friday, February 2!
Feb. 1, 2024
Welcome Dinner for Panelists (invitation only)
February 2, 2024
Duke Law School, Room 3041
8:30 - 9:00 am: Check-in and Breakfast
9:00 - 9:15 am: Opening Remarks and Welcome (Jolynn Dellinger and David Hoffman)
9:15 - 10:00 am: Fireside Chat: Mental Health Apps and Privacy (Marc Groman and David Reitman - moderated by Jolynn Dellinger)
10:00 - 10:15 am: Break
10:15 am - 12:00 pm: Panel on Healthcare Data - Technical, Legal, Policy, and Regulatory Solutions (Rachele Hendricks-Sturrup, Maneesha Mithal, Justin Sherman, and Tim Sparapani)
12:15 - 1:15pm: Panelist Lunch (invitation only)
About Data Privacy Day
History of Data Privacy Day and Data Privacy Week
Data Privacy Day began in the United States and Canada in January 2008 as an extension of the Data Protection Day celebration in Europe. Data Protection Day commemorates the Jan. 28, 1981, signing of Convention 108, the first legally binding international treaty dealing with privacy and data protection. Until 2021, Data Privacy Day was observed annually on Jan. 28 and is the signature event in a greater privacy awareness and education effort.
In 2021, the NCA (National Cybersecurity Alliance) expanded Data Privacy Day into Data Privacy Week with the goal of increasing awareness about online privacy.
Year-round, NCSA educates consumers on how they can own their online presence and shows organizations how privacy is good for business. NCSA’s privacy awareness campaign is an integral component of STOP. THINK. CONNECT.
Excerpt from Professor David Hoffman's Policy@Intel blog post:
"Data Privacy Day began with a conversation at my dinner table eight years ago, when Leonardo Cervera Navas and Jolynn Dellinger joined my family for dinner.
Leonardo had the idea first that it would be wonderful if there was a day when people could recognize those shared values and promote transatlantic cooperation. Data Protection Day had already been recognized in Europe and held on January 28th, which is the anniversary of the Council of Europe’s signing of Convention 108. It is Convention 108 which first recognized privacy as a fundamental human right. I have a vivid memory of Jolynn then saying, “We shouldn’t just talk about it, we should do it.” By the end of dessert, Data Privacy Day was born.
Data Privacy Day has come a long way since that dinner. Jolynn, the initial project manager for the event, turned our idea into a reality. Leonardo secured the participation of then European Data Protection Supervisor Peter Hustinx, and representative of the Italian Garante Giovanni Buttarelli for an event at Duke University Law School. Now thousands of organizations recognize Data Privacy Day and participate in events to build privacy awareness."